Happy, happy, happy to report that everything looks good with Kaylin! WHEW! After doing the normal workup - echo, blood pressures, and EKG - she looks good and her doctor thinks she has vessel motor control issues which are controlled by the central nervous system, not the cardiovascular system. It's nothing serious at all - just that she has a much higher sensitivity to cold than others. When she was younger, her hands would turn purple if she was out in the cold and her skin would get very mottled and that is just further evidence of this vessel motor control.
So, we cannot wait to resume water activities for the summer! Good thing because her upcoming birthday party is at a water sprinkler park and that was going to put a real damper on that if the birthday girl couldn't participate!!:)
We did learn that the gradient in her arch has gone up from a 2.7 to a 3.5 which you don't want to see. But because everything else looks good, nothing needs to be done at this point. We will return to the cardiologist in 3 months and then do a CT angiogram right after that to take a look at the stent which was fractured open and make sure everything still looks OK. Thanks for all your prayers! Now, if you could just pray that we get this girl potty trained ALL will be good in our world (hee hee)!
Subscribe to:
Post Comments (Atom)
Wonderful news! Thank you God!
ReplyDeleteHugs,
Kristen
so, so glad! love to you all.
ReplyDelete